What’s required of patients? Are there visits, tests, travel, etc. required?
PROMISE is designed to be simple and easy for patients and their physicians. Patients don’t have to leave their home or the care of their physician.
Patients answer a few questions online to see if they might be eligible for the study. If eligible, patients will fill out a consent form and some information about their demographics, health, and family history.
We’ll ship a DNA saliva test to the patient’s home with instructions. It will only take about 5 minutes to do the DNA saliva test.
After sending back the DNA saliva test with our pre-paid label, we will send the patient’s genetic testing results.
Patients who have a mutation in at least one of the genes tested will be invited to continue participating in PROMISE through online surveys every 6 months. We will also ask patients’ doctors for updated medical records for information on their treatment and care.
Patients can choose to leave PROMISE at any time. PROMISE is designed to continue for at least 20 years.